After a long wait, we finally got to talk to the neurosurgeon today. Peytin is doing wonderfully!!!! His ultrasound did not show any more fluid than one from 3 weeks ago nor has his head circumference grown abnormally. The doctor explained his vein issue like this, it is like a river with tributaries and most people take a certain path but when that path gets blocked you take a different course that ultimately ends up in the same place. Peytin's brain is doing just that. The main big vein that most people use to drain blood does not function properly so he created a new path that takes the blood to the same place. I imagine Peytin being a computer geek like his daddy and telling everyone how he created a better network than everyone else's :-) Our neurosurgeon's colleague, the leading hydrocephalus and spina bifida expert in the nation has only had one other patient with this issue in his over 30 years experience. They don't know what causes it but luckily Peytin's body is adapting to accommodate his special situation.
We will continue to monitor the fluid levels with ultrasounds every 3-4 weeks now instead of every week. If fluid levels become too high, Peytin will get a shunt in the water build up above his brain but we are hopeful that he will continue to do well. I am so glad that there was no more bad or unexpected news this week and thus no more tears. There is still a long road ahead with more unknowns with his bowel and bladder control and his developmental skills but we try to stay positive. I just love our little boy and am simply amazed by how miraculous everything has been and continues to be. Thank you all for praying for our wonderful son!
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